My name is Anthony Carbajal… and I have ALS.
ALS (Amyotrophic Lateral Sclerosis) is currently an incurable (let’s change that), progressive degenerative neurological disorder. For reasons that are still not completely understood, the nerve cells in my brain and spinal cord gradually deteriorate. As a result, we lose the ability to move, speak, swallow, and finally… to breathe. ALS leads to complete paralysis. Average prognosis is 2-5 years.
I have what is called familial ALS, 5 to 10% of ALS patients have this genetic disposition. My grandmother was diagnosed when I was in middle school, my mother was diagnosed when I was in high school and I was recently diagnosed at 26 years old. Shit.
I don’t want to be just another statistic, and my bet is… neither do you. Most of the videos and information we see about ALS is scary. KissMyALS.org was created to spark hope, spread awareness, raise funds for research and discuss the possibility of managing this disease. It’s important that we stay positive as much as possible with our journey with ALS. We need to finally CURE this disease and we can’t do it without YOUR participation and help! I honestly believe we’re stronger together. Let’s do this!
Please consider donating to ALS research or our family’s fund by following this link for further info: www.KissMyALS.org/Donate
Much love and gratitude.. today and always.