An inspiring story that hits very close to home. You’re Not You is in select theaters and On Demand TODAY! (October 10th) My family is all getting together and we’re having a movie night! My mother,... Read More34
Founded in 1999, ALS TDI was formed with the purest intent. After seeing the lack of focused research when his younger brother Steven was diagnosed with ALS, MIT-trained engineer Jamie Heywood & his family, set... Read More31
***Update*** On Monday 9/29 @ 7pm Daniel will be performing on STAGEIT! An online benefit show for ALS Research for only $10 Please buy your ticket by clicking on the link below: https://www.stageit.com/daniel_pulver/als_awareness_benefit_show_live_from_miami/40237 This song... Read More41
KissMyALS.org was created to spark hope, spread awareness, raise funds for research and discuss the possibility of managing this disease. It’s important that we stay positive as much as possible with our journey with ALS. We... Read More76
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Hi I'm Anthony Carbajal. Diagnosed with ALS at 26 yrs old.
RT @BriganceBrigade: "I am at a point in my disease where I require a caregiver with me 24/7...I don't want to survive...I want to LIVE and… 46 days ago
RT @killmyALS: In Japan, 90% of pALS opt for a tracheotomy to extend their lives compared to the only 5% here in the US. The Japanese gover… 55 days ago